Our positions - EGAN - Patients Network for Medical Research and Health

www.egan.eu Review:

EGAN - Patients Network for Medical Research and Health - The Patients Network for Medical Research and Health EGAN is an alliance of both National Genetic Alliances and European disease specific patient organisations with a special interest in genetics, genomics and biotechnology.

http://www.egan.eu/en/about-us About us - EGAN - Patients Network for Medical Research and Health - The Patients Network for Medical Research and Health is an alliance of national genetic alliances and European disease specific patient groups with a special interest in genetics, genomics and biotechnology.

http://www.egan.eu/en/about-us/our-mission Our mission - EGAN - Patients Network for Medical Research and Health - The Patients Network for Medical Research and Health is working for a voice in research and health policy and seeks a world in which genetic diseases are understood, effectively treated, prevented and the people affected supported.

http://www.egan.eu/en/about-us/governance Governance - EGAN - Patients Network for Medical Research and Health - EGAN's policies are realised by a voluntary board, volonteers from within its member organisations, advisors and project workers.

http://www.egan.eu/en/about-us/membership Membership - EGAN - Patients Network for Medical Research and Health - EGAN’s membership consists of national/regional alliances and of European disease-specific patient organisations with an interest in genetics, genomics and biotechnology

http://www.egan.eu/en/about-us/the-egan-team The EGAN Team - EGAN - Patients Network for Medical Research and Health - EGAN has a meeting facility in Brussels, Dutch Genetic Alliance VSOP provides the secertariat, and throughout Europe, several people are active in European projects or working as volunteers.

http://www.egan.eu/en/about-us/ethical-collaboration-policy Ethical Collaboration Policy - EGAN - Patients Network for Medical Research and Health - This policy details how EGAN will consider all its collaborations, including partnerships, sponsorship and joint working.

http://www.egan.eu/en/about-us/sponsors Sponsors - EGAN - Patients Network for Medical Research and Health - Sponsors include both funders of project that are carried out by EGAN, and unrestricted funds for EGANs exploitation. Sponsors of EGAN, including biomedinfo4all.com, in this year and last year are:

http://www.egan.eu/en/about-us/statutes Statutes - EGAN - Patients Network for Medical Research and Health - EGAN was officially founded on March 1st, 2005 in Brussels (Belgium).: statutes.

http://www.egan.eu/en/about-us/history History - EGAN - Patients Network for Medical Research and Health - EGANs predecessor EAGS, European Alliance of Genetic Support Groups, was founded in 1992.

http://www.egan.eu/en/our-activities/for-who For who? - EGAN - Patients Network for Medical Research and Health - EGAN works for and on behalf of patients with disorders with a genetic or congenital nature.

http://www.egan.eu/en/our-activities/projects Projects - EGAN - Patients Network for Medical Research and Health - EGAN and its members have an impressive record op participation in European projects

http://www.egan.eu/en/our-activities/projects/closed CloSed - EGAN - Patients Network for Medical Research and Health - Closed Clonidine for Sedation of Paediatric Patients in the Intensive Care unit

http://www.egan.eu/en/our-activities/projects/eupati EUPATI - EGAN - Patients Network for Medical Research and Health - European Patients’ Academy on Therapeutic Innovation (EUPATI) is an Innovative Medicines Initiative joint undertaking between the European Union and the European Federation of Pharmaceutical Industries and Associations. EUPATI is a patient-driven initiative to change the landscape in the EU by increasing the capacities and capabilities of well-informed patients to be effective advocates and advisors in medicines development. The project was launched in February 2012 and over the next 5 years it will work to create educational modules on all aspects of the development of new medicines.

http://www.egan.eu/en/our-activities/projects/preparing-for-life Preparing for Life - EGAN - Patients Network for Medical Research and Health - Preparing for Life aims to promote awareness and contributes to the development of programs for preconception care for all women of childbearing ages and their partners, particularly in middle and low-income nations

http://www.egan.eu/en/our-activities/projects/finished-projects/gened GENED - EGAN - Patients Network for Medical Research and Health - Gened: Improving non-genetics health professionals' understanding of genetic testing

http://www.egan.eu/en/our-activities/projects/finished-projects/nephird NEPHIRD - EGAN - Patients Network for Medical Research and Health - The project aimed at better availability of health services for rare disorders

http://www.egan.eu/en/our-activities/our-positions Our positions - EGAN - Patients Network for Medical Research and Health - In the submenus you will find our positions on several themes that are of important for patients.

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