www.lalsolace.org Review:

 

LAL Solace Patient Community - LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support - LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.

  • http://www.lalsolace.org/profiles/members/ Members - LAL Solace Patient Community - All Members | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/page/lal-info LAL D Info - LAL Solace Patient Community - Lysosomal Acid Lipase Deficiency (LAL D):LAL D is an inherited (genetic) disorder which means that it is passed down within a family. It is autosomal recessiv…
  • http://www.lalsolace.org/page/getting-tested-for-lal-deficiency Selected LAL Deficiency Treatment Centers * - LAL Solace Patient Community -  USA California Lucile Packard Children's Hospital at StanfordDr. Greg EnnsPediatric Genetics730 Welch Rd 2APalo Alto, CA9…
  • http://www.lalsolace.org/page/6373865:Page:1110 LYSOSOMAL ACID LIPASE DEFICIENCY (LAL D) - LAL Solace Patient Community - Lysosomal Acid Lipase Deficiency (LAL D):LAL D is an inherited (genetic) disorder which means that it is passed down within a family.  It is autosoma…
  • http://www.lalsolace.org/page/regulatory-process Regulatory Process - LAL Solace Patient Community - RegulatoryProcess for the Approval of DrugsBefore any drug can beprescribed Regulatory agencies such as the US Food and DrugAdministration (FDA) and Europe…
  • http://www.lalsolace.org/page/getting-tested-1 Getting Tested - LAL Solace Patient Community - Getting TestedLAL D can be diagnosed using a simple blood test that measures the amount of the Lysosomal Acid Lipase (LAL) enzyme.  People that have…
  • http://www.lalsolace.org/page/clinical-trials Clinical Trials - LAL Solace Patient Community - Clinical TrialsSynageva BioPharma Corporation was bought by Alexion Pharmaceuticals, which continues to study sebelipase alfa under the commercial name Kanuma…
  • http://www.lalsolace.org/page/resources-1 Resources - LAL Solace Patient Community - NORD - http://www.rarediseases.orgThe National Organization for Rare Disorders (NORD), is a unique federation of voluntary health organizations dedicated to h…
  • http://www.lalsolace.org/forum Discussion Forum - LAL Solace Patient Community - Latest Activity - Forum Discussions | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Dis…
  • http://www.lalsolace.org/events Events - LAL Solace Patient Community - Upcoming Events | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/page/about-us About Us - LAL Solace Patient Community - The SOLACE organization (Support Organization for LAL Deficiency - Advocacy, Care and Expertise) was created to bring LAL Deficiency patients and families toge…
  • http://www.lalsolace.org/page/contact-1 Contact - LAL Solace Patient Community - To contact LAL Solace, email us at: [email protected] check this email every day so I can get back with you quickly. Also, you can send me (Mary Pruitt) a…
  • http://www.lalsolace.org/video Videos - LAL Solace Patient Community - All Videos | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/forum/topics/how-long-are-your-infusions#comments How long are your infusions? - LAL Solace Patient Community - My daughter will be starting her Kanuma infusions soon, and I was just wondering how long the infusions are that you or your children receive, and if you've ev…
  • http://www.lalsolace.org/profiles/blogs/rare-disease-day-getting-the-word-out Rare Disease Day...Getting the Word Out! - LAL Solace Patient Community - Next week, on February 29 it will be Rare Disease Day! A day to recognize those of us who have been touched by a rare disease. And with LAL Deficiency, we cert…
  • http://www.lalsolace.org/profiles/blogs/world-symposium-2012 WORLD Symposium 2012 - LAL Solace Patient Community - Two weeks ago, Stephanie Dykes, Dakota's mom and our Board's secretary, and I travelled to San Diego for the WORLD Symposium. This was a conference dedicated t…
  • http://www.lalsolace.org/profiles/blogs/new-to-lal-solace New to LAL Solace - LAL Solace Patient Community - All,We are the parents of a CESD patient. Our oldest daughter, Maureen, was diagnosed with CESD when she was 5 years old. She is now 14 and we are glad to hea…

    Country: 208.82.16.68, North America, US

    City: -122.1514 California, United States

  • Jazoko - Rapist Vampires who enslave, rape, and murder humans

    This is a book about a girl and a vampire who fall in love. The issue being that said vampire had admitted to raping and murdering at least one girl but it is heavily implied that he has raped and murdered hundreds or even thousands of girls and feels zero remorse about that fact. Also the human girl is his kidnapped slave so yeah this book is pretty messed up and disturbing. Why they would make the love interest a literal rapist is beyond me.

  • nonnanj - happytimes

    I have used many high priced skin care products and I find Dr. Perricone face finishing moisturizer the best for the money. My face looks so refreshed and it feels great. I would recommend this product.

  • Clara W. - I recommend this to everyone who has pets and carpet

    This stuff works miracles! When I moved to WA from CO I was unprepared for fleas, never having dealt with them in such an arid place as CO. Giving my cats and dog drops monthly wasn't doing the job. I had this stuff professionally applied (and subsequently I've done it myself) and it worked perfectly! Kept the flea situation under control for over a year in between aplications. I recommend this to everyone who has pets and carpet.